Since this whole eczema thing with BabyK, I have been really thinking of dmoms and ddads. Granted, with him, all I have to do is eliminate some foods from my diet and coat him down with cream and a steroid on the bad spots twice per day. Heck, he could even grow out of this by the time heâ€™s two years old, though the possibility is only like, 19.-something percent.
I mean, it was overwhelming to me at first to know that BabyKâ€™s skin couldnâ€™t get dry and that he was itchy all the time when he was broken out. His symptoms can be helped and, if the triggers are found, outbreaks can be few and far between (weâ€™re working on finding the triggers). But with new d-moms and d-dads, itâ€™s a whole different story! D-moms and d-dads are thrown into a whole new world of shots, glucose meters, pumps, pens, strips, tabsâ€¦ the list can go on! Not to mention, when theyâ€™re diagnosed, they have it. Thereâ€™s (currently) no percentage possibility that theyâ€™ll outgrow it (and if there is, I was not in that percentageâ€¦ nor have any of my d-friends). I mean, thatâ€™s it â€“ no support group info given, no hope other than the ole â€œa-cure-is-coming-in-the-next-5-yearsâ€ crap (but hopefully weâ€™ll have the low-glucose suspend technology by then!!!), just a bunch of papers, rx for insulin, and other said accoutrements to help manage their kidâ€™s diabetes.
I guess Iâ€™ve always seen things from the inside looking out. Just like right now. My bg is 311 (high before breakfast, and breakfast made it that much higher! So frustrating!), but you really from the outside canâ€™t tell. I can tell on the inside because I feel tired, dizzy, and just plain yucky. Parents must feel absolutely bat-fit crazy at times because they donâ€™t know what their kidâ€™s blood sugar is doing! Are they high or just tired? Is he/she coming down with a cold? And the LOWS! OMGosh! Itâ€™s no wonder these parents are like white-on-rice when it comes to their kidâ€™s diabetes care. They donâ€™t know how the kids are feeling and how diabetes affects them, they just know that their baby (no matter how old) is fighting to live with this disease, and itâ€™s their responsibility to keep them as healthy as possibleâ€¦ even if this means listening to them scream through shots or finger pricks, or coaxing them to chug down water when they have ketones, or eat something when they are low even though they are animate in refusing it.
Now, granted, yes I do sort of have it easy right now with BabyK. But what do if he doesnâ€™t grow out of this allergy/eczema and he turns out to be allergic to diary and eggs even throughout childhood? (Which Iâ€™m beginning to think itâ€™s eggs. Havenâ€™t had eggs in two weeks and heâ€™s starting to clear up!) What do I do if he goes to school and someone gives him food that has said allergen in it and he breaks out, Heaven forbid it exacerbate into a respiratory allergy as well and he have an asthma attack (very likely since his dad has asthma)? I know Iâ€™m probably going overboard â€“ really overboard. The kid is 3 months old and Iâ€™m flashing forward years into his life, panicking over something that hasnâ€™t even happened yet.
I guess I need to learn that there are a lot of â€œwhat-ifâ€s in life, diabetes or eczema included, and I need to just take things as they come. I canâ€™t do anything about what may or may not happen in the future for him, I can only do what I can for him today as he is.
D-moms and D-dads who I know from Twitter, Facebook, and TuD, you guys rock. Because of all of this, I have a different, deeper, new appreciation for you guys. I seriously wish there were some sort of diabetes boot-camp that newly diagnosed kids and parents of said kids could attend when a diagnosis was given. Like, maybe a week long camp, just like diabetes camp, but more one-on-one. Granted, this would cost an arm and a leg Iâ€™m sure, but can you imagine? In my mind, it would give better insight to what diabetes is, and maybe even help get the kidâ€™s insulin’s adjusted quicker to what they need. Something similar to what was done when I was little â€“ I stayed in the hospital for a week or so. I hear they donâ€™t do that nowâ€¦ just diagnose you and send you home with instructions. It wouldnâ€™t even have to been an all day thing. Like, maybe a two-hour meeting each night for a week to discuss things with a nurse practitioner or doctor. And if could be available for newbies as well as if things were going out of hand again later on, like during growth-spurt times.
I donâ€™t know â€“ itâ€™s just an idea. All I really know is that no matter how serious/easy/hard it may be to manage, finding out your kid has a chronic illness sucks.