Coming to Grips with Another Diabetes Complication

In May, I was sitting at home, working away, when suddenly my heart started racing. My chest hurt, my shoulder hurt, my neck felt as if someone was squeezing it. I was trying not to panic because I knew it would just make things worse.

Frantically, I searched for the symptoms of heart attacks in women. The worst of the pain was in my neck region, which didn’t really fit anything I found.

It didn’t feel like heartburn – I had experienced many levels of heartburn before, so this wasn’t it. It went on for days. I suddenly couldn’t drink soda or flavored drinks or eat very much without chest and throat pain. Many foods just didn’t work with my tummy any longer.

I called my primary care physician and went to him that day. I described what happened, and all he could say was it was possibly GERD. So, since I had already tried things like Tums and Zantac (on a whim), he said to just start taking Prevacid and see how things were. If not any better in two weeks, to come back.

Two weeks later, still in pain, I went back, and he simply said: “Okay, let’s try another brand”, so we went to Nexium.

Two weeks later, I was back. It’s still not helped as much as I would hope, although it was a bit better. So, the next step was an upper endoscopy. We had already checked for H-pylori and celiac, both of which came back negative.

The upper endoscopy came and went, and although the doctor told us “all was clear”, it did reveal a small hiatal hernia. When looking up symptoms, it did answer a LOT of questions.

So, the diagnosis, for the time being, was GERD (even though I didn’t feel any “heartburn” caused by the hernia, and likely what I felt was an esophageal spasm, which is triggered by GERD, and can be very painful and explain the sudden heart racing experience. Just like a strained muscle, it can take a long time to get better.

I was given another medication, Carafate, to take before meals to help even more since the Nexium still wasn’t enough, and was scheduled for a gastric emptying scan. The doctor wanted to rule out gastroparesis before trying another medication that would replace both the Nexium and Carafate, but can’t be taken if you have gastroparesis.

I went in for the scan thinking all would be fine. I ate the egg mixture and took my picture. I waited for the next picture 30 minutes later… and the next and the next…. up to 2 hours. The tech was nice, but also had me concerned, progressively asking questions as we took more photos: how long have you had diabetes? Do you know anything about gastroparesis? Do you take any medications to slow digestion? How well controlled is your diabetes?

At the 2 hour scan, I didn’t meet the requirements to stop the test. Nor at 3 hours. And not at 4, though, they stop the test anyway.

I knew what it meant, but I didn’t want to think about it. I had already been searching Google to know the criteria. I knew I hadn’t met it, but I didn’t want to *know* it. All I could think was I had failed. Another complication. Another failure in my medical history for doctors who don’t have a clue to be able to judge me by.

It took over a month to get the “official” paperwork because the gastroenterologist went on vacation for an extended period of time when I the day after I had the test done. I finally was able to get the paperwork:

Mildly Delayed Gastric Emptying

In other words, mild gastroparesis.

Which means, I can’t take the other medication.

Which means, I have both GERD and mild GP – both of which are associated complications of having diabetes for a long period of time.

I have learned that I need to remain on Nexium probably for the foreseeable future, which isn’t terrible. I’ve also learned the hard way that keeping blood sugars under 150mg/dL for *me* seems to keep away the GP symptoms (that I didn’t realize I even had until I was beginning to feel better).  If I don’t do those two things, I begin feeling miserable again.

I’ve also learned I need to give up on thinking its just a short-term thing. I thought I would be ok after I forgot to bring my my medicine on my trip to Vienna, and by the last day of my trip, I was not feeling well at all. I had also been higher than usual due to my stress of traveling, so both the mix of being in the 150-250 range just made for an uncomfortable time. Food was not my friend. I didn’t let it stop me from enjoying my time there, though.

So while I do have two new things to add to my list of complications, I’m very appreciative that they are not severe. I’m thankful that they are something I can live with and know how to take care of, and I know that there can be flare-ups (like I have right now due to my own fault), but it’s not something I can’t handle. I’m also very thankful to have the 670G pump because it has helped me TREMENDOUSLY in the last few months that I’ve been in auto mode.  The lower amounts of swings in my BG has helped to cut down on the symptoms, which I will be forever grateful.

I know I’ve been silent, but it’s something I wanted to process on my own. I’ve had to work through a lot of guilt. I’m thankful to have very close friends who have helped me deal with the mental aspect that comes with this new world as well.

I’m ok. I’m not going to let it get me down. I’m still determined to live the best I can.

5 thoughts on “Coming to Grips with Another Diabetes Complication”

  1. I’m Type II diabetic, Gerd and Gastroparesis.
    I’ve taken Nexium for years. I experienced terrible stomach pain on occasion. Express Scripts would not longer fill my prescription for Nexium and sent me Protonix…. my stomach pain stopped. I can’t tell you how wonderful it is not to double over with stomach pain in the morning. I was shocked because it had been several years that I had been experiencing this.

  2. Sarah – I’m sorry you have to deal with this diabetes complication and thank you for sharing your story with us. I’ve been living with t1d nearly 55 years now and taking nexium about 15 years. Happy to say I haven’t had any discomfort or related complications. While I don’t have gastroparesis I can’t speak to that but I know it’s not easy to accept this diagnosis. I’m feeling positive you will do fine with your knowledge and diligence. Keep us informed. Hugs.

  3. I am always here for you to share what works and what doesn’t, even if it is different for everyone. I hope this flare up does not last long and that you start feeling better again soon! xoxo

  4. I have had diabetes for 43 years and the same test with similar results for many years. I have to say I do not mind the eggs to much at about the 3rd time. I am glad the results are not terrible, but no one wants a new complication. I am sending good energy and wishes that this can also be overcome. We may not be overachievers, but we are all overcomers.

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