This may not mean a lot to some, and some may have heard this before – quite often, even – from their endocrinologists. This is something I rarely hear from my endocrinologist – usually, if I ask about trying something new, he’s totally on board with it and sort of lets me do my own thing. I don’t think he’s ever told me specifially “no” to something I’ve asked about wanting to try (in regards to my diabetes, that is)… until yesterday.No

It was the weirdest feeling.

My hopes were sort of up that he would let me try Victoza along with my usual care plan to see if it could help “flatten” things out. I’ve seen a lot of good success stories from other Type 1’s who’ve used it and seen the graphs shared, so it had me intrigued so much more than the Symlin that I had tried before, for the simple fact that it was once a day, not at every meal. Plus, if it helped me curb my appetite, that would be even better.

But, when I asked about it, he told me no. He wouldn’t prescribe it because it’s mechanism isn’t approved for Type 1’s, whereas Symlin is simply replacing the hormone Amylin that the pancreas also no longer makes.

Part of me was upset. He’s never told me no. Hopes – gone. But then, part of me was overcome with happiness and satisfaction that he told me no, simply because it made me feel like we actually are a team and he’s not just going to give me anything I ask for. I almost wanted to hug him.

So, my quest continues for better control through things I’m learning about in Dr. Bernstein’s book and performing trial and error with what I have available to me now. (Though, I just have to interject here and say that my endo was VERY happy with my control over the past 2 weeks! And honestly, it’s not been terribly hard! But more on that stuff later.)

6 Thoughts on “He Said No

  1. My endo said “No” to me when I wanted to try using the Enlite sensors with my Revel pump. He’s always been open to letting me try things, but this one he flat out denied, because it was “off-label” and he had “no idea” how the one device could, or did, communicate with the other.

    It was weird, for sure. But he took the time to explain his reasoning, and while I was angry with him for his decision, I respected him more for how he handled it.

  2. Gary Cunningham on July 23, 2014 at 2:36 pm said:

    Sarah, do you still use Symlin? Does it help you?
    Thanks
    Gary

  3. You’re right that the “no” actually meant that he was listening to you and that he is doing what he thinks is best for you. The trend seems to put more people with Type 1 on Type 2 drugs, but it’s all off-label with anecdotal results. I’ll be interested to read what you’re thinking of Bernstein.

  4. At least it sounds like he has your best interest in mind – kudos to you for even asking, and for him to say no if he wasn’t completely comfortable with it :)

  5. Push it with him. Victoza has been a miracle drug for me after 14 years my b.s. is flat. No more huge spikes. Advocate for yourself.

  6. Pingback: Around the Diabetes Blogosphere: Hot Summer 2014 Edition : DiabetesMine: the all things diabetes blog

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