So, here we are, 10 days after the DME diagnosis, and we have some news. Partly good, partly eh.. not great but not terrible either.
The spot that was diagnosed as being Diabetic Macular Edema turns out to simply be cystiod macular edema, and that’s good. What’s the difference? Well, with cystic macular edema, the cause isn’t always known – and in this case, the cause really isn’t known.. it could be stress related OR diabetes related, though he doesn’t feel that it is d-related now thought it could be (cue the confusion). The location on the vessel where the leak occurred is not where a spot that is affected by diabetes is. It wasn’t one of those dots, or ballooned vessels, that burst. It simply, for some reason, broke open in that area and leaked a lot of fluid. Over the past week, the area of the vessel has been healing, and now there is some slight leakage happening, but nothing like it was when it first happened. The specialist doesn’t want to do anything at the moment other than watch it to be sure that it continues to heal on it’s own.
In other news, I do have spots in my eyes. It has been diagnosed as Mild Nonproliferative Retinopathy. So, basically, my eyes are in the very beginning stages of showing damage. He talked with me about my glucose control and basically even though he sort of gave me the look of “you’re doing an awesome job”, he told me that simply the fact that I’ve had diabetes as long as I have is the reason this is happening, and stressed that I now need to keep a closer watch on my kidneys and feet. The NPR is in a stage that doesn’t require treatment at the time, just needs to be watched for now.
What has me baffled though is when I had a scan of my eyes at my optometrist’s when I was pregnant, spots were there then too, and I followed up with the ophthalmologist that I have now five months later and he didn’t see them. Sort of makes me wonder if he’s missed them for over three years… thus do I need to find a new ophthalmologist? Or will I stay seeing the retina specialist from now on? I sort of don’t know what to do about that whole situation.
So, I go back in 6 weeks. I will have the dye run in my eyes again (yay for highlighter yellow pee and weirdly awesome temporary tan!) and I’ll have more images and pictures taken to see how the edema is and decide on how to proceed from there, though he feels that will have healed by then.
To everyone who have sent me messages and emails and comments, I greatly appreciate your love and support and prayers during this time. It has helped me so much. You guys are the best!